Sunday, April 5, 2009

The Darkest Hour

I hate to be melodramatic, but it really does feel like we have reached our darkest hour. The sad part is, I know that here is worse to come.

To put the last few days in a nutshell, I went in to see a specialist on Thursday, who diagnosed a molar pregnancy, which can metastasize to other parts of my body. It is pretty much cancer, though not necessarily malignant. He felt that this was an immediate threat to my health and wanted me to be put in the hospital. Some other doctors looked at the evidence and thought that it was such a long shot that they searched through medical journals all through the night to find an alternate explanation. They then sent me to another specialist in Kansas City for a complete second opinion. That doctor diagnosed a completely different disorder, one that suggests that Emma's condition is spreading to the placenta and therefor affecting my health. We are already seeing the effects of this. The risk with this condition is that it can then spread to me, and basically give me the same symptoms as Emma...pulmonary edema, heart failure, etc.

The bottom line is that the doctors really can't agree on a course of action or treatment. Situations like this are very rare and difficult to predict, even with doctors who specialize. Right now the docs at Fort Riley are collecting all of the medical opinions from several doctors, to include the specialists that I have already seen and other doctors spread all over the country who will be reviewing my charts. Meanwhile, we sit and wait. I think it goes without saying that it is very scary to be in a situation where we rely on the doctors with the medical training to help, but they can't really agree. I can only liken it to drowning in a lake while a huge crowd of people watch, each holding a life jacket, but no one taking action because they can't agree on what to do.

Thanks for all of the words of encouragement and prayers. We are very well supported. My parents jumped on a plane immediately after hearing about the complications and are here to help. I cannot be grateful enough for their generosity. Along with our friends Corey and Kelly, they have cleaned the house, taken care of Timmy and provided some distraction and listening ears for us. They have made it possible for us to maintain the household while we go to appointments, cry, take walks or just stare at the wall in disbelief. We try to look for silver linings each day. For the past few days our stated silver lining has been that we haven't broken anyone's kneecaps. I think today I have come to the more obvious realization that we have the best support network or friends and family that anyone could ever ask for.

8 comments:

Household6 said...

Kim,

Thank you for sharing, I check your blog about 1000x a day.

I think your analogy was a good one. I wish we could be there to help, Timmy would have a blast with our crew and ya'll get just grieve, and think, and cry, etc.

I've heard of the condition where your body mimics the babies (or at least something similar).

Praying,

Heather

Nancy said...

Wow. Not what I was expecting from the 2nd opinion, Not what you, or the doctors expected either by the sound of it! :( Oh Kim... I am glad you have such a wonderful group of people around to support you. Wish I could stop by and just offer a quick hug. Thinking of you guys around the clock, and look forward to talking to you whenever you need a fresh pair of ears to vent to. Call anytime.

xox

Linda Barnhart said...

I, too, am thinking of you all the time, and continue to send mountains of positive energy your way. Hoping that the doctors can agree quickly on a course of action so this interminable waiting can end. With love -- Linda in San Diego

The Bender's said...

We continue to hold you close in prayers and our thoughts. And are also very glad to hear you have a good support network and know there are many all over the World supporting your family as well....our military families reach is limitless.

Thinking of you,
Craig and Karen

Karen said...

Kim,
There is so much I wish I could say to you right now, but words seem so inadequate. Please know that I think of you so often throughout the day. I will also pray for the doctors and medical team who care for you and sweet Emma.

There is nothing worse, as a mother, than knowing that there is nothing you can do to make your child well... to keep her with you. Still, I am CERTAIN that Emma knows how much she is loved and wanted.

Please call if you ever want to talk. (I've picked up the phone so many times to call you, but don't want to intrude on your privacy and grief.) I'll always be here...

Karen M

Unknown said...

Kim,
We so sorry that things are so difficult right now for you and Tim. You are constantly in our thoughts and prayers. Look for God's hands in the little things and rest on all the prayers that are being spoken on your behalf. There are so many of us back in Va. praying for you each day. We will pray for clarity in next steps and for wisdom for the doctors helping you.
Love and prayers,
Cindy and David Woolwine

Anonymous said...

Kim and Tim,
Please know we are constantly thinking of you and praying for you. We would like to bring over a meal for you sometime this week. We'd also love to watch little Timmy for you anytime. I know Erik really enjoyed seeing Tim the other day. Please, know we are here, if you need anything at all. We will keep praying for you and your family.

The Kemerling Family

Joyce said...

Once again just sending prayers your way. Happy to see that your parents have come to help out. Big Hugs to you and your family.
joyce